Sohail's story

Support Sohail to live as independently as possible.

Sohail has cerebral palsy, preventing him from being able to walk, communicate verbally or feed himself. When he was five, extreme seizures left him brain damaged and with a tracheostomy tube, but under the care of his mother, grandmother and two sisters, Sohail was still able to lead an active life and regularly attended a local centre for young people with learning disabilities similar to his own.

However, five years ago when he was 23, Sohail contracted peritonitis, a severe infection of the abdomen that resulted in him spending six months in intensive care. When he left hospital Sohail’s care needs had intensified and his family required additional help.

The local CCG commissioned Pulse Community Healthcare, one of their preferred suppliers, to devise and implement a suitable package of care. The care package, which Sohail’s family helped develop, involved direct clinical input from our multi-disciplinary team and was fully tailored and ‘person-centered’. It involved integrating with all stakeholders, including Sohail’s hospital team and GP. Before care commenced, we ensured that all were satisfied with, and fully supportive of, our proposed plan.

Initially, the team stayed with Sohail throughout the day and overnight, allowing his mum Sohaila to leave the house when she needed to and focus on her role as mother rather than primary carer. Sohaila benefited from the knowledge that her son was receiving the specialist support his condition demanded whilst being encouraged to lead as independent a life as possible.

Sohail, now 28, continues to receive care from the Pulse Community Healthcare team. As the years have gone by, his behavior has become more challenging, mainly due to frustration and, at times boredom. However, he continues to have an excellent relationship with his team members who are very familiar with his routine and are able to safely manage his behavior and support him with all aspects of his daily care.

After his bout of peritonitis, Sohail’s mother was reluctant to let him visit the local day centre, scared he would contract another infection. The team recently worked with the local CCG to implement the necessary procedures at the day centre, allowing him to start attending again, three times a week, without the risk of further infection. To date, this has been very successful.

Sohail’s Pulse Community Healthcare team continue to support him day and night, caring for his physical needs, but also encouraging him to do what he enjoys: watching films at the local cinema, visiting the pub and park, shopping and even visiting the Pulse Community Healthcare office. They also encourage Sohail to keep a photo diary of all his trips and activities.